Tagged with 'sanfilippo syndrome'

Due to the rapid regression of this disease, many children rarely progress above the mental age of three-years-old. Therefore, most children with Sanfilippo are not potty trained and deal with incontinence for their entire life. When they are younger, this may not be a "big deal," however, as our children grow, finding proper places to change an older child's diaper in public can be difficult. We often find ourselves laying down a chux pad, blanket, or towel on a public restroom floor to care for our children. It can also be difficult to simply find diapers that fit an older child.